It Starts With Me

I opened my Facebook feed this morning, and there it was for the umpteenth time in the past few months….a meme shared that perpetuates misinformation about addicts.

I was angry seeing it, yet again.

And then it had me thinking about everything the past couple of years—the comments, the questions, the looks, and I was angry again…..with family, friends, acquaintances, doctors, psychiatrists, addiction professionals and strangers who have continued to judge and perpetuate the stigma and misinformation surrounding addicts and their families.

I was angry because for the past couple of years I have had to explain to others my son and our situation and the choices we have made that they “kindly” tell me are wrong. And angry because I continue to need to correct the misinformation and have to continue to fight for help for my son from professionals who make decisions on care based on their own judgements and beliefs about addicts.

I was just angry with everyone this morning.

And I realized just how tired I am of all of it.

I. AM. TIRED.

Some days are just like that.

And then my day went on.

My son is having to deal with some health and dental issues now that are a result of his life these past few years. And he was not mentally ready to go to one of those needed appointments today……I was not happy.

We argued.

He said he was just having a really bad day…..and I said I was too….I wasn’t feeling well and wished I could have just stayed in bed today…….

And then, just before my next words came out of my mouth…..it hit me. Another epiphany!

I was about to tell my son that we all have to do things we don’t want to do and we just do it……BUT it hit me in that moment…..I still didn’t completely understand…….

I have been living with my son’s emotional ups and downs his entire life. I have been his biggest advocate for help. I am advocating for change within our broken system. And I have been living and explaining life with a loved one who suffers from mental illnesses and addiction, yet I STILL don’t completely GET IT!

And if I still struggle to understand…..if I still struggle to wrap my head around it when he just cannot get out of his bed or cannot look someone in the eye or cannot do the daily things the rest of us do….then HOW can I expect anyone else to understand? How can I expect anyone else to “get it”? To know what it is like? And how can I expect compassion?

And how can I be angry with those who do not understand….who have never walked this walk……who have never been in my shoes?

I realized that it is up to me to help others to understand what this life is like, to understand the realities and the truths instead of the myths and stigma and stereotypes. I need to help others so that they can find compassion for those who are sick and for their families…….

And my anger left me…..my anger at the world and my anger with my son.

No matter how tired I am, I must continue to explain, to advocate for aid and to advocate for change. And I cannot judge others who have never walked in my shoes, my son’s shoes or my family’s shoes.

I am now taking the leap and formulating what it is I want you all to know……the lessons we have learned, the loneliness and isolation, the fear, the dread…… And I will share this soon, in the hope that it will help to change the narrative surrounding those with mental health illnesses.

The change starts with me.

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